Summer Support

Swimming is a great way to get low-impact exercise. Unfortunately, on rare occasions, people with an ostomy are improperly denied access to a public pool due to misconceptions about leakage.

"It's important to advocate for yourself," explains Ed Pfueller, UOAA Communications & Outreach Manager.

UOAA has helpful self-advocacy resources available on their website to help resolve the situation should it occur. First, review the statement from UOAA President Susan Burns, outlining the facts about ostomies and the security of pouching systems. Second, you'll find "FAQs for Pool Facility Owners and Operators". Print out the letter and FAQs and pack them in your pool bag along with your sunscreen, just in case you need them. If these materials don't resolve the issue, UOAA provides links to file a complaint. For your reference, you can find the UOAA swimming toolkit here.

UOAA communicates directly with the Transportation Security Administration (TSA) in the interest of making travel easier for people with ostomies. Before you even pack your bag, go to UOAA's website for a list of 10 travel tips ranging from what supplies to pack to requesting passenger support through TSA Cares. Then, be sure to download and print the Travel Communication Card and Restroom Communications Card. These handy cards will help you discreetly communicate with TSA officers and flight attendants.

"Keep in mind that all are welcome at our affiliated support groups that meet in the summer," adds Ed. "You can also contact our support group leaders if you are stuck somewhere and need assistance finding extra supplies. Our website has a support group finder to locate a group wherever you are." Summer travel plans? Check out the UOAA travel tips for the latest guidelines direct from the TSA.

When you're out in the sun exercising or sightseeing, dehydration can sneak up on you. Make sure to stay hydrated! Download UOAA's Ostomy Nutrition Guide, which includes a section on fluids and electrolytes, a helpful chart outlining symptoms of dehydration as well as sodium and potassium depletion, and lists of foods high in sodium and potassium. The Ostomy Nutrition Guide is also packed with tips and information about ostomy-friendly foods, organized by the various types of ostomies. Keep it year 'round as a handy resource. Of course, keep in mind that every person is different, and it's important to consult your physician or dietitian for individual needs. The UOAA Diet and Nutrition Guide can be helpful in understanding the importance of hydration.